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Our Purpose
Our purpose is to champion equal access, inclusion, and opportunity for every individual living with sickle cell disease. We are committed to educating, equipping, and empowering the sickle cell community to “Live by Design, and Not by Diagnosis,” ensuring that each person has the tools and support needed to thrive.
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Our Mission
We work to create a world where those living with sickle cell disease have fair and equitable access to quality education, comprehensive healthcare, and strong support systems. Our mission is to eliminate barriers, challenge inequities, and provide a level playing field so that disability never determines destiny.
We strive to make a lasting impact by showing individuals with sickle cell disease that they deserve—and can achieve—the same educational opportunities, health resources, and community support available to those without disabilities. Our ultimate goal is to ensure that every person feels valued, treated equally, and empowered with the access they need to live full, self‑directed lives.
National Sickle Cell Month
National Sickle Cell Awareness Month isn’t just symbolic—it’s a catalyst for education, advocacy, research, and support. It helps ensure that people living with SCD are seen, heard, and cared for with the urgency and dignity they deserve.
Download The Sickle Cell Awareness Month Toolkit
Download Kit
Join us in raising awareness about the critical need for research and treatment of sickle cell disease and sickle cell trait this September, recognized as National Sickle Cell Disease Month. Your support can make a difference!
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Upcoming Events
As new events roll out throughout the year, let’s make it a priority to stay in touch, share updates, and show up for one another. Whether it’s educational sessions, fundraising opportunities, or community gatherings, each moment brings us closer to better care, stronger voices, and brighter futures for everyone living with sickle cell.
If you haven’t already, be sure to stay connected through our social pages, so you never miss an opportunity to engage, support, or learn. Together, we keep the movement alive — and together, we make change happen.